But research takes time, and Zoghbi said shes heartbroken that she and her team werent able to bring to the table something that could help Henry directly. "It was a long time coming, which made it all the sweeter an unexpected reward," he wrote. His muscles are moving. 13,572, This story has been shared 12,221 times. The award-winning Engel has been with NBC News since 2003 and became its chief foreign correspondent in 2008. She also shared the link to donate to support research in Henry's memory. His condition progressed and hes developed dystonia: uncontrolled shaking/ stiffness. And neither did Henry. Now that he's getting bigger, he can barely move independently.". It was fun. [15] In May 2008, he interviewed U.S. President George W. Bush, largely about his speech to the Israeli Knesset. On Monday, the NBC News chief foreign correspondent shared a sweet video of the moment his youngest son took his first steps. Henrys physician, Dr. Huda Zoghbi, discovered the genetic cause ofRett syndromeand, years later, she found that Henry had a one-of-a-kind mutation to the gene that causes the syndrome. And Henry could still help Zoghbi give these patients and their families what theyve been waiting for. His reporting appears across NBC and MSNBC platforms. We always surrounded him with love and he returned it, and so much more. That would be a dream. Richard Engel's son died of Rett syndrome. His cells may help find a The Tragic Death Of Richard Engel's Son - MSN Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from juicy celebrity news to compelling human interest stories. the doctor wrote in a tribute to her little patient. His quiet fight against this terrible disease was incredible," the doctor wrote in a tribute to her little patient. According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability. "You were amazing warriors for Henry pouring your love and care into him and fighting for him every day with everything youve got. Get browser notifications for breaking news, live events, and exclusive reporting. He was also unlucky, born with a rare genetic disease called Rett Syndrome.". And now Henry is a big brother, too.". The Untold Truth Of Richard Engel - NickiSwift.com 12,221, This story has been shared 9,366 times. Because of Henrys unique mutation, Zoghbis team is using Henrys cells in ongoing research. Happy Birthday Binks (our nickname).. NBC's Richard Engel shares update on son with special needs - Today "His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. He didnt always respond as they expected, but the excitement in his eyes told them he enjoyed and appreciated it. 3 min read. The NBC News chief foreign correspondent, 48, shared the heartbreaking news on Twitter Thursday. Over the years, Engel has shared regular updates on his son's condition with the TODAY team and has been candid about the struggles and the joys of parenting a child with special needs. But even with all the difficult moments, there have been joyful milestones, too such as when Henry said Dada for the first time at 3 and a half years old. Richard Engel announced on social media that his 6-year-old son Henry Engel has died after an aggressive battle with Rett syndrome, a rare brain disorder. Quotes displayed in real-time or delayed by at least 15 minutes. "His quiet fight against this terrible disease was incredible. We always surrounded him with love and he returned it, and so much more," Engel wrote alongside a sweet photo of his son. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo, he shared. ", Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us," Engel wrote. One of the visits, I was so excited because he did say, Dada. That was a word we heard from him., Due to the pandemic and the Engels being based in the U.K., she didnt see Henry for two years prior to his death. When we first met Henry he couldnt stand steady. Sitemap, Your California Privacy Rights Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome. "For everyone following Henry's story, unfortunately, he's taken a turn for the worse," the journalist captioned the touching clip. "Hes healthy, happy (unless you unwrap his swaddle) and thirsty. [17], In 2009, Engel was stationed in Kabul, Afghanistan, covering the country's August presidential election. opened up on the "Today" show in Marchwith an emotional essay, NBC correspondent Richard Engel gets emotional after son with Rett Syndrome says 'Dada', 'Little People, Big World's Jeremy Roloff reveals he and wife Audrey are having a boy, Your California Privacy Rights / Privacy Policy. But the one I was thinking about today was his tenacity. Engel shared an update on Henry's health in May, noting that his condition had "progressed" and he had "taken a turn for the worse.". IE 11 is not supported. "We don't want anyone else to go through this. He had the softest blue eyes, an easy smile and a contagious giggle. Through a genetic test, doctors learned he had a mutation to his MECP2 gene. There is no cure for the condition, and people with Rett syndrome need care to treat their symptoms. As a geneticist and researcher, Zoghbi also values the moment when Henry met her team of students and scientists researching a cure for Rett syndrome. ', Sharon Stone Shares Tribute to Her Late Brother 2 Months After His Death: 'Thinking of My Bro', How Bruce Willis' Diagnosis of Frontotemporal Dementia Differs from Alzheimer's Disease, What Is Frontotemporal Dementia?
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